AVM Alliance Podcast
The AVM Alliance Podcast was created for parents who are taking care of a medically complex child including those who have been diagnosed with epilepsy or rare disease. This podcast has a slight focus on pediatric stroke, Brain AVM / Aneurysm (brain vessel disease) and traumatic brain Injury (TBI). The goal is to provide helpful information and remind other parents they are not alone on this difficult journey. Thank you for joining us.
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Service Animals & Opportunity in Limitations
Today we are going to be talking about something many parents consider for their child who has a disability: service animals! We are going to go over the general ADA rules as well as the steps to take and things to consider when deciding if a service animal is the right addition for your family. Ou…
Episode 15: Against the Odds
Sometimes parents of children who have suffered a stroke feel like they don't fit in and we provide an analogy that hopefully will change that mindset. Our guests today are AVM Brain bleed survivors Kyler Lewis and Ashley Lindsey who talk about what it is like to deal with brain vessel disease. We …
SE 2: Episode 1: The Doctor is IN: Brain Vessels, MRI, & CTs Explain…
We are beginning season two with a 3 part “The doctor is In” Series going over questions with Dr. Stuart Fraser, the director of the pediatric stroke program with McGovern Medical School at UTHealth Houston. This month’s Part one episode focuses on medical terms parents read on radiology reports an…
SE 2: Episode 4: A Kid Again
Today, I am excited to introduce our listeners to the absolutely fabulous organization everyone should know about — A Kid Again created to provide kids with life-threatening conditions and their entire family with the opportunity to forget about the stress that comes with having a child with a med…
Creed's Story & What Will Never Be: Anticipatory Grief
Creed is missing the majority of his brain. He essentially only has his brain stem and all of his other brain is missing. Doctors deemed her child deemed incompatible with life, but Creed has defied the odds is now 9 years old. What is anticipatory grief? It is the emotions associated with grief be…
Recent Episodes
The Therapy TriFecta
Creed's Story & What Will Never Be: Anticipatory Grief
SE 2: Episode 4: A Kid Again
SE 2: Episode 3: The Doctor is IN: Therapy for Kids
SE 2: Episode 2: The Doctor is IN: Medical Terms, Epilepsy & Pediatric Stroke
SE 2: Episode 1: The Doctor is IN: Brain Vessels, MRI, & CTs Explained
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Recent Blog Posts
What is Constraint-induced Movement Therapy (CIMT)
Constraint-induced movement therapy (CIMT) is a therapeutic approach commonly used for both pediatric and adult patients who have experienced a stroke. In the context of pediatric stroke patients, CIMT aims to improve motor function and mobility in …
AVM Alliance
AVM Alliance is a Non-Profit 501(c)(3) Charity, created to educate the public about pediatric stroke, show children who have this condition that they are not alone, provide valuable support and information to help families on their journey, …
CaringBridge.org: A Lifeline for Parents Navigating Their Child's Str…
When my child suffered a stroke, the emotional toll was overwhelming. Alongside my concern for my child's well-being, my husband and I found ourselves grappling with the challenge of keeping friends and family informed about the ongoing developments…