AVM Alliance: A Pediatric Stroke Podcast
AVM Alliance is A Brain AVM / Aneurysm Pediatric Stroke Podcast for families affected by traumatic brain Injury (TBI), brain vessel disease and stroke.
Recent Episodes
The Kailee Mills Foundation
May 15, 2023
In Brain News, researchers have recently performed a successful surgery to repair a Vein of Galen Malformation, in a baby’s brain before birth. This month's interview is with Brianna McCulloch who runs the Kailee Mills Foun…
Scars & Healing
Feb. 21, 2023
A Pediatric ischemic stroke is a type of stroke that occurs when a blockage, such as a blood clot, reduces or completely stops blood flow to a part of the brain. This causes brain cells to be damaged or die, which can cause …
It's Not All in My Head: An HHT Story
Feb. 7, 2023
This podcast starts with a brief explanation of the genetic condition, Hereditary Hemorrhagic Telangiectasia (HHT) and tells the story of Stephany Zumerling who suffered for years without the correct diagnosis. Her medical j…
Icing Smiles: Baking a Difference
Jan. 24, 2023
This morning we are starting with a Brain News medical study. A study with the University of Cincinnati will examine the effectiveness of a stroke treatment for patients with a pre-stroke disability, one of the first studies…
Don't Dis My Ability
Jan. 12, 2023
In Brain News we go over two published studies from Stanford University involving Stem Cell treatment for Stroke survivors. Our guest today is Jonathan Slifka who was born with spina bifida who discusses the importance of wo…
The Bright Side
Jan. 4, 2023
In Brain News: Survivor, Malori Rodgers, just released her book “A Stroke a Heaven” which talks about her personal journey after a traumatic brain injury. Our guest today is Heather Golladay, who talks about the importance …
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Recent Blog Posts
online group for moms whose child's brain AVM has ruptured
Healing Hearts: AVM Mom’s Edition Support Group is an online support group for mothers who are either dealing with a child's diagnosis or who have lost t…
Rare Disease Day is February 28th
February 28th is recognized globally as Rare Disease Day. It's a day dedicated to raising awareness about rare diseases and their impact on the lives of …
Our Support Program for pediatric Stroke Parents
New Support Specialist program for families with a child who has had a stroke. Volunteers Needed.