Episodes

Welcome to AVM Alliance, where we delve into the world of pediatric stroke and brain disorders with honest conversations and valuable insights for our community. In this episode, host Raylene Lewis shares her experiences from the International Pediatric Stroke Organization …

Creed is missing the majority of his brain. He essentially only has his brain stem and all of his other brain is missing. Doctors deemed her child deemed incompatible with life, but Creed has defied the odds is now 9 …

Today, I am excited to introduce our listeners to the absolutely fabulous organization everyone should know about — A Kid Again created to provide kids with life-threatening conditions and their entire family with the opportunity to forget about the stress …

Happy October to all our listeners. October is Brain AVM Awareness Month. As a reminder, A brain AVM is a tangle of abnormal arteries and veins, that do not have the needed capillaries in between the connections. If you would …

On this episode, we continue our interview with the director of the pediatric stroke program with McGovern Medical School at UTHealth Houston as we go over questions parents submitted for our medical professional. Today’s episode continues the discussion, diving a …

We are beginning season two with a 3 part “The doctor is In” Series going over questions with Dr. Stuart Fraser, the director of the pediatric stroke program with McGovern Medical School at UTHealth Houston. This month’s Part one episode …

Sometimes parents of children who have suffered a stroke feel like they don't fit in and we provide an analogy that hopefully will change that mindset. Our guests today are AVM Brain bleed survivors Kyler Lewis and Ashley Lindsey who …

In Brain News, researchers have recently performed a successful surgery to repair a Vein of Galen Malformation, in a baby’s brain before birth. This month's interview is with Brianna McCulloch who runs the Kailee Mills Foundation-- a charity on a …

A Pediatric ischemic stroke is a type of stroke that occurs when a blockage, such as a blood clot, reduces or completely stops blood flow to a part of the brain. This causes brain cells to be damaged or die, …

This podcast starts with a brief explanation of the genetic condition, Hereditary Hemorrhagic Telangiectasia (HHT) and tells the story of Stephany Zumerling who suffered for years without the correct diagnosis. Her medical journey offers lessons we can all learn from …

This morning we are starting with a Brain News medical study. A study with the University of Cincinnati will examine the effectiveness of a stroke treatment for patients with a pre-stroke disability, one of the first studies to focus on …

In Brain News we go over two published studies from Stanford University involving Stem Cell treatment for Stroke survivors. Our guest today is Jonathan Slifka who was born with spina bifida who discusses the importance of working together to make …

In Brain News: Survivor, Malori Rodgers, just released her book “A Stroke a Heaven” which talks about her personal journey after a traumatic brain injury. Our guest today is Heather Golladay, who talks about the importance for looking at the …

Today's episode includes a discussion on yesterday's MSN published article: “Doctors dismissed these 3 young people's symptoms as migraines or drug-related — but they were really having strokes.” We welcome guest Dina Chon with the Aneurysm and AVM Foundation and …

This week, the short film Time Bomb was released to showcase the real life challenges of a rare disease diagnosis and was created with the help of The Aneurysm and AVM Foundation. With the holiday’s approaching, decadent treats and delicious …

In today’s news we will talking about a new youth medial clinic that just opened this past November for children suffering from Cerebral Palsy, Traumatic Brain injury and stroke based on published journal findings on Hyperbaric medicine for brain injuries …

Today we are talking about brain Aneurysms and will be visiting with Natalie Niekro who started the Joe Niekro Foundation after her father’s sudden passing from a ruptured aneurysm. And We will end with a short discussion finishing up Chapter …

Today we are going to be talking about the UCSF Pediatric Stroke Research Center and three of their current research projects headed by Dr. Heather Fullerton. We will visit with guest Jennifer Odell whose beautiful son Brayden gained his wings …

Today we are going to be talking with guest Sherri Logan who started The AVM Research Foundation with her husband Mark and we will end with a short discussion on the second half of Chapter 1 of our current focus …

Today we are going to be talking about something many parents consider for their child who has a disability: service animals! We are going to go over the general ADA rules as well as the steps to take and things …

Today we are going to get caught up on some Awareness Month information and statistics. Our guest on the show is Amy Danner, who is the mother of an AVM Survivor and Epilepsy warrior. We are going to end with …