Healing Hearts: AVM Mom’s Edition Support Group is a new online support group that meets once a month and is dedicated to offering support, hope, and comfort to mothers who are either dealing with a child's brain AVM (arteriovenous malformatio…

February 28th is recognized globally as Rare Disease Day. It's a day dedicated to raising awareness about rare diseases and their impact on the lives of those affected by them. It's an opportunity to "Show your Stripes!" acknowledging the strength a…

Having a child who has suffered a stroke can be a very challenging and emotionally draining experience for families. The journey to recovery can be long and difficult, and having support from others who have gone through a similar experience can be …

Magnetic Resonance Imaging (MRI) and Computed Tomography (CT) scans are both diagnostic medical imaging tests used to visualize internal structures of the body, but they differ in a number of ways, including: Imaging Technique: MRI uses strong magn…

A seizure is a sudden, uncontrolled electrical disturbance in the brain that can cause a variety of symptoms. A seizure can have many different symptoms including convulsions, muscle contractions, partial paralysis, confusion, staring off into space…

Hereditary Hemorrhagic Telangiectasia, also known as HHT, is a genetic disorder that causes malformed blood vessels and the development of telangiectases and AVMs. It can cause an array of symptoms such as nosebleeds, trouble breathing, and bleeding…

Different parts of the brain can cause different side effects if they are damaged or affected. The specific side effects that occur depend on the location and extent of the damage in the brain. Some common examples include:Frontal Lobe: The frontal …

  Avastin (bevacizumab) is a type of chemotherapy medication that is sometimes used to reduce brain swelling when the swelling from Gamma Knife (or other stereotactic radiosurgery) radiation treatment of an AVM becomes excessive and is not suc…

The Aneurysm and AVM Foundation (TAAF) is a non-profit organization that aims to provide support, education, and resources to individuals and families affected by aneurysms and AVMs (arteriovenous malformations). The foundation's mission is …

The Joe Niekro Foundation is a non-profit organization that was founded in 2008, after the death of Joe Niekro, a Major League Baseball pitcher. The foundation's mission is to raise awareness about brain aneurysms and to provide education and suppor…