Constraint-induced movement therapy (CIMT) is a therapeutic approach commonly used for both pediatric and adult patients who have experienced a stroke. In the context of pediatric stroke patients, CIMT aims to improve motor function and mobility in …
AVM Alliance is a Non-Profit 501(c)(3) Charity, created to educate the public about pediatric stroke, show children who have this condition that they are not alone, provide valuable support and information to help families on their journey, …
When my child suffered a stroke, the emotional toll was overwhelming. Alongside my concern for my child's well-being, my husband and I found ourselves grappling with the challenge of keeping friends and family informed about the ongoing developments…
In the pursuit of answers for how to emotionally deal with my son's AVM Rupture, another AVM (Arteriovenous Malformation) mama recommended to me the Book "Hope Heals," a remarkable story about Katherine and Jay Wolfe. Their story of resilience and t…
Healing Hearts: AVM Mom's Edition is an international support group that meets once a month via zoom for mothers whose child has received a brain AVM diagnosis and also mothers whose child has gained their wings from a Brain AVM rupture. The meeting…
Healing Hearts: AVM Mom’s Edition Support Group is a new online support group that meets once a month and is dedicated to offering support, hope, and comfort to mothers who are either dealing with a child's brain AVM (arteriovenous malformatio…
February 28th is recognized globally as Rare Disease Day. It's a day dedicated to raising awareness about rare diseases and their impact on the lives of those affected by them. It's an opportunity to "Show your Stripes!" acknowledging the strength a…
Having a child who has suffered a stroke can be a very challenging and emotionally draining experience for families. The journey to recovery can be long and difficult, and having support from others who have gone through a similar experience can be …
Magnetic Resonance Imaging (MRI) and Computed Tomography (CT) scans are both diagnostic medical imaging tests used to visualize internal structures of the body, but they differ in a number of ways, including: Imaging Technique: MRI uses strong magn…
A seizure is a sudden, uncontrolled electrical disturbance in the brain that can cause a variety of symptoms. A seizure can have many different symptoms including convulsions, muscle contractions, partial paralysis, confusion, staring off into space…
Hereditary Hemorrhagic Telangiectasia, also known as HHT, is a genetic disorder that causes malformed blood vessels and the development of telangiectases and AVMs. It can cause an array of symptoms such as nosebleeds, trouble breathing, and bleeding…
Different parts of the brain can cause different side effects if they are damaged or affected. The specific side effects that occur depend on the location and extent of the damage in the brain. Some common examples include:Frontal Lobe: The frontal …
Avastin (bevacizumab) is a type of chemotherapy medication that is sometimes used to reduce brain swelling when the swelling from Gamma Knife (or other stereotactic radiosurgery) radiation treatment of an AVM becomes excessive and is not suc…
The Aneurysm and AVM Foundation (TAAF) is a non-profit organization that aims to provide support, education, and resources to individuals and families affected by aneurysms and AVMs (arteriovenous malformations). The foundation's mission is …
The Joe Niekro Foundation is a non-profit organization that was founded in 2008, after the death of Joe Niekro, a Major League Baseball pitcher. The foundation's mission is to raise awareness about brain aneurysms and to provide education and suppor…
Gamma Knife radiation therapy is a non-invasive treatment option for brain AVMs (arteriovenous malformations) that uses high doses of radiation to target and destroy the abnormal blood vessels. The Gamma Knife is a specialized device that delivers r…
Service animals can play an important role in assisting children who have had a stroke. Ischemic stroke is caused by a blockage in a blood vessel that supplies blood to the brain. Hemorrhagic stroke is caused by a break in a bloo…
Annie is our magical unicorn fox. She wears the red aneurysm awareness ribbon in her hair to help tell the story of how children are affected by brain aneurysms just like adults. Aneurysms can occur anywhere in the body, including in the brain, whe…
A brain AVM (arteriovenous malformation) is a tangle of abnormal blood vessels connecting arteries and veins in the brain. These vessels bypass the normal capillary system, allowing blood to flow directly from the arteries into the veins. This can l…
Icing Smiles is a non-profit organization that provides custom cakes to families of children who are suffering from serious illnesses. The organization was founded in 2009 by Tracy Quisenberry, a mother who wanted to use her baking skills to bring a…
General things to think about: Pediatric stroke patients under the age of 18 face a variety of challenges. One of the main challenges is the lack of understanding and awareness about pediatric stroke, which can make it difficult for children and th…
Dash says. "When it comes to Pediatric Stroke, it is important to remember B.E. F.A.S.T.!" The signs of a pediatric stroke can vary depending on the child's age and the type of stroke they are experiencing. However, some common signs to look …